Sunday, January 29, 2012

What people say when they are dying.

When my mother was dying nearly 5 years ago, 
I became acquainted with several of the hospice nurses who would come to our home 
to offer guidance and help with her care.  
I was curious about all these hospice workers, 
how they work everyday with life and death.  
I asked one of the nurses what the religious backgrounds were with most of their employees.  
She told me that their backgrounds varied, greatly.   

I asked if all their workers believed in God and in an afterlife.  
She told me, that yes, they did have some workers who did not believe in God 
when they first began working for hospice….
but, she said, after working for hospice, every one of them believes in God and an afterlife.  
She said over time working with people who are getting ready to die, 
they have seen too much and felt too much to NOT believe in God

 
You may have seen this article (or below) on CNN news today. Or maybe you didn't.
I think you will find it very interesting. The post I shared right before this one may have seemed harsh, and I believe it was, but I wish that that "mother" could have read this article before she made the decision she did.

Editor's Note: Kerry Egan is a hospice chaplain in Massachusetts and the author of "Fumbling: A Pilgrimage Tale of Love, Grief, and Spiritual Renewal on the Camino de Santiago."
By Kerry Egan, Special to CNN

"As a divinity school student, I had just started working as a student chaplain at a cancer hospital when my professor asked me about my work.  I was 26 years old and still learning what a chaplain did.

"I talk to the patients," I told him.

"You talk to patients?  And tell me, what do people who are sick and dying talk to the student chaplain about?" he asked.

I had never considered the question before.  “Well,” I responded slowly, “Mostly we talk about their families.”

“Do you talk about God?

“Umm, not usually.”

“Or their religion?”

“Not so much.”

“The meaning of their lives?”

“Sometimes.”

“And prayer?  Do you lead them in prayer?  Or ritual?”

“Well,” I hesitated.  “Sometimes.  But not usually, not really.”

I felt derision creeping into the professor's voice.  “So you just visit people and talk about their families?”

“Well, they talk.  I mostly listen.”

“Huh.”  He leaned back in his chair.

A week later, in the middle of a lecture in this professor's packed class, he started to tell a story about a student he once met who was a chaplain intern at a hospital.

“And I asked her, 'What exactly do you do as a chaplain?'  And she replied, 'Well, I talk to people about their families.'” He paused for effect. “And that was this student's understanding of  faith!  That was as deep as this person's spiritual life went!  Talking about other people's families!”

The students laughed at the shallowness of the silly student.  The professor was on a roll.

“And I thought to myself,” he continued, “that if I was ever sick in the hospital, if I was ever dying, that the last person I would ever want to see is some Harvard Divinity School student chaplain wanting to talk to me about my family.”

My body went numb with shame.  At the time I thought that maybe, if I was a better chaplain, I would know how to talk to people about big spiritual questions.  Maybe if dying people met with a good, experienced chaplain they would talk about God, I thought.

Today, 13 years later, I am a hospice chaplain.  I visit people who are dying in their homes, in hospitals, in nursing homes.   And if you were to ask me the same question - What do people who are sick and dying talk about with the chaplain?  – I, without hesitation or uncertainty, would give you the same answer. Mostly, they talk about their families: about their mothers and fathers, their sons and daughters.

They talk about the love they felt, and the love they gave.  Often they talk about love they did not receive, or the love they did not know how to offer, the love they withheld, or maybe never felt for the ones they should have loved unconditionally.

They talk about how they learned what love is, and what it is not.    And sometimes, when they are actively dying, fluid gurgling in their throats, they reach their hands out to things I cannot see and they call out to their parents:  Mama, Daddy, Mother.

What I did not understand when I was a student then, and what I would explain to that professor now, is that people talk to the chaplain about their families because that is how we talk about God.  That is how we talk about the meaning of our lives.  That is how we talk about the big spiritual questions of human existence.

We don't live our lives in our heads, in theology and theories.  We live our lives in our families:  the families we are born into, the families we create, the families we make through the people we choose as friends.
This is where we create our lives, this is where we find meaning, this is where our purpose becomes clear.

Family is where we first experience love and where we first give it.  It's probably the first place we've been hurt by someone we love, and hopefully the place we learn that love can overcome even the most painful rejection.

This crucible of love is where we start to ask those big spiritual questions, and ultimately where they end.
I have seen such expressions of love:  A husband gently washing his wife's face with a cool washcloth, cupping the back of her bald head in his hand to get to the nape of her neck, because she is too weak to lift it from the pillow. A daughter spooning pudding into the mouth of her mother, a woman who has not recognized her for years.

A wife arranging the pillow under the head of her husband's no-longer-breathing body as she helps the undertaker lift him onto the waiting stretcher.

We don't learn the meaning of our lives by discussing it.  It's not to be found in books or lecture halls or even churches or synagogues or mosques.  It's discovered through these actions of love.

If God is love, and we believe that to be true, then we learn about God when we learn about love. The first, and usually the last, classroom of love is the family.

Sometimes that love is not only imperfect, it seems to be missing entirely.  Monstrous things can happen in families.  Too often, more often than I want to believe possible, patients tell me what it feels like when the person you love beats you or rapes you.  They tell me what it feels like to know that you are utterly unwanted by your parents.  They tell me what it feels like to be the target of someone's rage.   They tell me what it feels like to know that you abandoned your children, or that your drinking destroyed your family, or that you failed to care for those who needed you.

Even in these cases, I am amazed at the strength of the human soul.  People who did not know love in their families know that they should have been loved.  They somehow know what was missing, and what they deserved as children and adults.

When the love is imperfect, or a family is destructive, something else can be learned:  forgiveness.  The spiritual work of being human is learning how to love and how to forgive.

We don’t have to use words of theology to talk about God; people who are close to death almost never do. 

We should learn from those who are dying that the best way to teach our children about God is by loving each other wholly and forgiving each other fully - just as each of us longs to be loved and forgiven by our mothers and fathers, sons and daughters."

6 comments:

Susan Rozier said...

You are so good at asking questions and being interested in others. At this very difficult time in your life, you were still inquisitive and getting people to share their perspective. It's a talent I admire. Susan

Sue said...

What a wonderful article. Thanks so much for sharing it, Jill.

I agree wholeheartedly.

=)

Karen Mortensen said...

Beautiful article.

Eileen said...

This is a beautiful post, Jill.
Thanks for sharing this, it's one of those 'stay in you heart' stories. And I agree wholeheartedly.

Love and Prayers,
Eileen

Anonymous said...

Very, very touching. Thanks for this.
When my mother died, she couldn't speak anymore, but volumes were being spoken through our touch and eye contact. No words needed.
darlene

cristie said...

this piece is filled with valuable insight. wisdom. i thank you for sharing this. i read every single word. xox